Founders

The founders and their partners: Ron and Mary Waters, Chris and Lloyd Roever Sadly Ron passed away in early 2007.The Australian Pituitary Foundation (APF) was created by Lloyd Roever and Ron Waters – Lloyd chaired the Foundation and Ron was Secretary and Treasurer from its inception in 1994 until they retired in 2002. Left to right: Ron and Mary Waters, Chris and Lloyd Roever. Sadly Ron passed away in early 2007.

Both Lloyd and Ron had personal experience with pituitary disorders; one has a child with a pituitary condition, and the other personally suffered a pituitary tumour and the array of hormonal symptoms that resulted.  They first met at Westmead Hospital, and it was through their association with the Hospital's endocrine department that the APF was conceived.

Both men dedicated an enormous amount of voluntary time, funds and travel on the establishment and development of the Australian Pituitary Foundation, with the support of their wives and families.

In 1998, their work led to the approval of PBS funding for Sandostatin LAR, a key medication for pituitary patients. Their work also included a lobbying campaign for Growth Hormone funding which the APF carries on to this day.

The APF has since attained benevolent society status and it operates from a home office in Queensland and through a network of State coordinators.

Children's Growth Foundation

Mr Bruce Nettleton and Mrs Roslyn Kazacos originally founded the Children’s Growth Foundation in order to successfully lobby to gain PBS listing of Growth Hormone (GH) for children with GH deficiency or short stature.

In October 2003, The Children’s Growth Foundation (CGF) joined the APF, and the APF is continuing this initiative, lobbying the Federal Government to include GH replacement therapy on the PBS for adults as well.

In 1998, the APF successfully lobbied to increase the availability of pituitary medications and gained approval of PBS funding for Sandostatin LAR.  It is hoped this success will be repeated for Growth Hormone therapy.

The APF is establishing special support groups for families of children with pituitary disorders.  If you would like to be involved, please contact your state representative.  Specialist paediatric content is continually being added to the website.

About GH deficiency

‚ÄčGH deficiency can be caused by a number of conditions that result in permanent damage to the pituitary gland and may occur in childhood or adulthood. 

Interference in the production of GH from the gland is most commonly caused by a pituitary tumour. Damage to the pituitary may arise from the tumour itself or occur as a result of medical intervention to treat the tumour, such as surgery and radiotherapy.  Some children are born with the inability to produce GH and therefore remain GH deficient throughout life.

Without treatment these people suffer muscle wastage, obesity, fatigue, depression and social isolation. Unmanaged, it can have severe health consequences.