Acromegaly Stories

Jillian - what a great outcome!

I recall back to November 2004 when I had two weeks holidays from work. I worked as an Enrolled Nurse at a local hospital. I was 23, single and enjoyed going out drinking with friends. I shared a house with a friend and loved my independence. During my holidays it felt as though the whole two weeks I had a continuous headache and was tired all the time and I sadly didn’t end up doing much at all except sleep. Read more...

The Importance of being Positive – Kel

In January, 1996, I went to a new GP complaining of tightness in my hands, similar to a glove full of water. I was unable to make a clenched fist and I knew something was wrong. I thought it was fluid retention. However following some astute recognition of symptoms by the doctor and a follow-up blood test I was diagnosed with a pituitary macro-adenoma. Read more...

My Story – Ron

In February 1986 I was diagnosed as having acromegaly - a complaint which I had, with hindsight, for a number of years - as I learnt at the time of diagnosis. I exhibited most of the usual classical features – large hands and feet, incorrect bite, protruding jaw, high forehead, sleep apnea, oily thickish skin etc . These symptoms had gradually become evident over the years but I assumed they were just part of my make-up. Read more...
Final Update: July 2006

My Story - Pat

I suffered from the vast majority of symptoms associated with acromegaly; enlarged hands and feet, skin tags, tingling in the hands, weight gain and the onset of impaired vision amongst others. The worst symptoms were joint pain and acute sinusitis, which led me to see my GP in the mid 1980’s.
Read more...

Brett

In 1997, at the age of 37, I was at work when I started to feel hot with sweat running down my face and soon pain generating down my left arm. As I worked at a medical service I called for a doctor who confirmed that I was having a heart attack. Read more...

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