Patient Stories - Cushings Disease

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Timeline – Nikki

My name is Nikki.  I had Cushing’s Syndrome, but now I’m cured and this is my story.

I gave birth to my son in May 2000. After 15 months of breastfeeding I had retained a lot of my pregnancy weight and I was beginning to gain weight. I was concerned about other changes that were occurring... Read more


My Journey – Sue

My problems began in my 20’s when I first began to put on weight, had irregular periods, noticed more body and facial hair, and had episodes of depression. I was diagnosed as having Polycystic Ovarian Syndrome (which presents similarly to Cushing’s Disease but is caused by a very different disease process)... Read more
Updated:  March 2013


My Story – Annie

It is still hard to believe that this has all happened.  For about 15 years I knew that there was something wrong.  I was plagued with ‘things’ like insomnia, mood swings, my periods stopped when I was 40, red itchy face that peeled, extreme lethargy, unable to concentrate, feeling down, loss of libido and I always felt hot.  And the list went on... Read more
Updated: February 2013

Something's not right - Jack

I have always been fit and active.  I enjoyed an active sporting life being a skier.  On an average day I would ski for 6-7 hours and not think twice about having a number of late nights.  Over the years, between 39 years old to 42, I was slowing down too quickly.  Various visits to the GP put this down to old age, an identity I refused to accept...    Read more

I thought I couldn't have another child - Megan

After surgery which resulted in my pituitary gland being removed, I never thought I could fall pregnant again, but two years later my daughter arrived!  To anyone out there who is going through a tough time in any way and does not see the end of the road. I am here to tell you that there are times in our lives when we will all feel the same but you do get there and miracles, just like my little miracle, do happen!!... Read more 


Would you like to contribute a story on your experience with Cushings Disease?  If so, please contact our membership team.