Patient Stories

Everyone's story is different, and sharing your experiences with others can be such a positive experience, both for you... and for your audience.    
We encourage parents of children to write about their experience of raising a child with a pituitary condition. No matter how small or large your information is always welcome.  Please email them to our membership team or phone Sue on 1300 331 807 to talk it over.  Photos and graphics are an extra bonus and help to personalise the story - please send them in!

Click on 'Read more' to view and print these stories.

Siobhan... our little miracle girl

Richard & Carolyn have been married for 10 years and live in Brisbane; they have three children, Brianna, Matthew and Siobhan.  Siobhan was born in 2004 and was diagnosed with Pituitary issues at around 4 months of age.  This is her story. Read More...

Tahlia - it is wonderful to see her growing and well

Tahlia was born on 25 May 2006 at North Shore Private Hospital in Sydney. Everything went well and a beautiful little sister for Matthew arrived. After about 12 hours though, Tahlia was taken off to the nursery because she wasn’t feeding. That unfortunately was the start of a long journey!

Madi - a story from her Grandmother

Our Madi was born in October 2007.  When she was about 2 months old she started having hypoglycemic seizures and was admitted to intensive care, that's when the doctors found out that her pituitary gland hadn't developed properly.  Read More...

Elizabeth - our sweet bundle of joy

We have learnt a lot about Elizabeth’s condition in the last three years. It was rough going at first. It took time to get use to having to give daily medications, then the injections, regular clinic visits, blood tests, keeping an eye on her wellness and learning the signs to know when to increase her medication and late night dashes to the hospital.  Read More...

The content of patients stories are the opinion of individuals and not the Australia Pituitary Foundation or its office bearers. The information is not intended to be used as a substitute for professional health or other advice, but as general interest material. You should not rely on this information to make decisions about your child's health or lifestyle without consulting a health professional.