Links

We hope you find the following links useful:

Australian Addison’s Disease Association Inc 
www.addisons.org.au
The Association seeks to educate medical professionals to have a higher awareness of Addison's disease and to also make the general public aware of the disease. Up to date information is supplied to people with Addison's disease and the Association provides a caring network to give support for people with this disease. In particular, the Association hopes to share information relevant to people with Addison's disease in and around Australia, and encourage contact through its growing network of state-based support groups. 
Phone:   02 6652 4761
 
The ATF is an Australian wide organisation which supports and educates it's members and the general public on the importance of good thyroid health and thyroid disorders. Services provided for members of The ATF include, Member's Meeting, Telephone and Email Support, Regular Newsletters, Information Days and educational material.  
Phone: 02 9890 6962
 
Thyroid Australia 
www.thyroid.org.au
Thyroid Australia is a support organisation for people with thyroid conditions as well as their families and their friends. Thyroid Australia is a voluntary organisation whose founding members have suffered or been affected by various thyroid conditions and who wish to help others in similar situations. 
Phone: 03 9888 2588  Mon, Wed, Thurs 10am to 3pm
 
Diabetes Australia 
www.diabetesaustralia.com.au
Diabetes Australia was established in 1984 as the national peak body for diabetes in Australia providing a single, powerful, collective voice for people living with diabetes, their families and carers. A non-profit organisation, Diabetes Australia works in partnership with diabetes consumer organisations, health professionals, educators and researchers to minimise the impact of diabetes in the Australian community. Diabetes Australia is committed to turning diabetes around through awareness, prevention, detection, management and the search for a cure.

Some of our key focus areas include: Developing policy and advocating in the interests of all people affected by diabetes; Raising community awareness of diabetes; Supporting research into improved understanding and treatment of diabetes, and
Administering the National Diabetes Services Scheme (NDSS)
Phone: 1300 136 588

 
Vision Australia 
www.visionaustralia.org.au
Vision Australia Limited is the largest provider of services to people who are blind or vision impaired in Australia, assisting more than 38,000 children and adults to live the lives they choose. Vision Australia works with people to enable them to experience life to its fullest. It offers a range of services that can be tailored to a person's level of vision and their individual needs. 
Phone: 1300 847 466
 
Australasian Menopause Society 
www.menopause.org.au

Since 1988 the Australasian Menopause Society (AMS) has been at the forefront of new directions in women's health and the management of menopause. It aims to bring accurate, evidence-based information to doctors, nurses and allied health professionals who have special interests in women's health in midlife and menopause and the promotion of healthy ageing.
Phone: 03 9428 8738

Impotence Australia 
www.impotenceaustralia.com.au
Impotence Australia is a not-for-profit organisation that was set up to decrease the suffering of men with impotence and their partners by providing quality telephone counselling. In addition to telephone counselling, Impotence Australia provides information fact sheets on many sexual issues. Impotence Australia strives to develop and maintain relations with consumers and health professionals to improve treatments and care. Impotence Australia is an independent consumer organisation with no ties to any clinical services. 
Phone: 1800 800 614
 
Andrology Australia 
www.andrologyaustralia.org
Andrology Australia aims to raise the awareness of male reproductive health conditions through community and professional education programs and provides information and resources on targeted areas of male reproductive health including androgen use and abuse, male infertility, erectile dysfunction, testicular cancer and prostate disease (including prostate cancer). 
Phone: 1300 303 878
 
Brain Tumour Support Service, Cancer Council Qld
www.qldcancer.com.au
The Brain Tumour Support Service provides support and information to people who have had a brain tumour, their family or friends, whether benign or malignant. Support is provided through regular meetings in Brisbane and information and education days involving health professionals working in the area of treatment, rehabilitation and support. Information is provided about brain tumours, treatment, support agencies, and rehabilitation services. Newsletters are provided for state-wide support. 
Phone: 131120
 
Carers Australia 
www.carersaustralia.com.au
Carers are usually family members who provide support to children or adults who have a disability, mental illness, chronic condition or who are frail aged. Carers can be parents, partners, brothers, sisters, friends or children. Some carers are eligible for government benefits while others are employed or have a private income. Carers Australia is the national voice of carers. It also provides support services for carers around Australia. 
Phone: 1800 242 636 
 
Self Help Organisations
There are organizations in most states which provide information, resources and referral to self help and support groups. Some of these organisations have very useful directories and conduct management courses for those living with chronic conditions.
QLD   Self Help Queensland Inc (SHQ)  
www.selfhelpqld.org.au   Ph:  07 3344 6919
ACT   SHOUT Inc.  
www.shout.org.au   Ph:  02 6290 1984
WA   Support Groups Association of WA Inc.
www.connectgroups.org.au    Ph:  08 9228 4488
VIC   Collective of Self Help Groups (COSHG) 
www.coshg.org.au   Ph:  03 9650 2005
 
IDEAS
www.ideas.org.au 
The IDEAS' website provides a high quality accessible web portal for people with disability and people with age related disability, their families, carers and other supporters to access and search for information that promotes their independence.
Ph: 1800 029 904  or  02 6947 3377

Australian Network of Brain Injury Associations
AUS
    Brain injury Australia
www.braininjuryaustralia.org.au     Ph: 1800 BRAIN1
QLD    Synapse Inc.
www.synapse.org.au     Ph:   07 3137 7400
QLD    Headway Gold Coast 
www.headwaygoldcoast.org     Ph:  07 5574 4311
NSW  Brain Injury Assoc. of NSW
 www.biansw.org.au     Ph:  02 9868 5261
VIC     BrainLink Services
www.brainlink.org.au     Ph:  03 9845 2950
TAS    Brain Injury Assoc. of TAS 
www.biat.org.au     Ph:   03 6278 7299
WA     Headwest  
www.headwest.asn.au    Ph:  08 9330 6370
SA      Brain Injury Network of SA 
www.binsa.org     Ph:  08 8217 7600
NT      Sommerville Community Services
www.somerville.org.au    Ph:  08 8920 4100 
 

beyondblue
beyondblue's mission is to provide anational focus and community leadership to increase the capacity of the broader Australian community to prevent depression and anxiety and respond effectively. They aim to build a society that understands and responds to the personal and social impact of depression and anxiety, works actively to prevent it, and improves the quality of life for everyone affected. Genuine participation in all beyondblue programs by people whose lives have been affected by depression and anxiety is a key aspect of beyondblue. The organisation has supported the development of a new national body, blueVoices to take forward the wide range of issues that arose in beyondblue's national community forums and specific focus groups with consumers and carers. 
www.beyondblue.org.au   Ph:  1300 224 636

Black Dog Institute
The Black Dog Institute is a world-leader in the diagnosis, treatment and prevention of mood disorders such as depression and bipolar disorder. Combining expertise in clinical management with cutting edge research the Black Dog Institute develops new, and more effective, strategies for people living with mood disorders. The Institute also places emphasis on teaching people to recognise the symptoms of mood disorders in themselves and others, as well providing them with the right psychological tools to hold the black dog at bay. 

Services Include: Specialist mood disorder clinics; Community education; Professional education; Workplace education; 
Online education programs
www.blackdoginstitute.org.au  Ph: 02 9382 4530

Doctors4U® 
www.doctors-4u.com
Medical Directories with listings of Doctors, Chemists and Hospitals in every
capital City of Australia, as well as Cairns, the Gold Coast and Launceston.


International 

The Pituitary Foundation (UK)
www.pituitary.org.uk
The Pituitary Foundation is a national patient support, information and advocacy organisation for pituitary patients, their families, friends and carers, which operates throughout the UKand Republic of Ireland. It is estimated that there are between 70,000 and 80,000 pituitary patients in the UK. The Foundation was launched in November 1994 following research amongst patients and clinicians regarding the need for such an organisation. 
 

Pituitary Network Association (USA) 
www.pituitary.org
The Pituitary Network Association (PNA) is an international non-profit organization for patients with pituitary tumors and disorders, their families, loved ones, and the physicians and health care providers who treat them.

PNA was founded in 1992 by a group of acromegalic patients in order to communicate and share their experiences and concerns. PNA has rapidly grown to become the world's largest and fastest growing patient advocacy organization devoted to the treatment and cure of pituitary disorders.
 
The Mayo Clinic (USA) 
www.mayoclinic.com
This website provides information and tools to help you manage a chronic disease or condition. Type “pituitary” in the search area.

Hormone Health Network (USA)
http://www.hormone.org
The Network is endorsed by the Endocrine Society - a ery informative website which helps endocrine patients and health care providers have more informed discussions about hormones and health. There are free, on-line resources which come from the most advanced clinical and scientific expertise in endocrinology. "Hormones keep your body in balance".

Updated: March 2013