Annual Report 2017/18

The Australian Pituitary Foundation has undergone significant change over period July 2017 to June 2018.

A snapshot of the activities over this period are:

  • Launch of a new website (previously updated 2012-13) with a rebranded logo, slogan and implementation of a Friends and Supporters section.
  • Participation in a Growth Hormone Hackathon sponsored by Pfizer and co-ordinated by Sue Kozij both at her home in Brisbane and in Sydney. We await the final product of this project but the participation of the patients (children) and their families was inspirational.
  • Presentation to the Pfizer Medical Department and the Global Chief Medical Officer (Dr Freda Lewis-Hall) strengthening the collaboration between Pfizer and the APF
  • Review of an updated (second edition) Acromegaly Handheld Handbook for patients with acromegaly expertly edited by Ann Robinson.
  • Supported an endocrine nurse to attend the ENSA 2018 conference with an APF Travel Grant.
  • Successfully launched a rebranding event at Kooyong Tennis Club utilising the new log and branding to create excitement and awareness to the local community. Attended by over 80 people from patient groups, clinicians, pharma and the APF.
  • Appointment of the inaugural Australian Pituitary Foundation Ambassador, Mark Harvey. Mark is an ex-AFL footballer having been the premiership winning captain of the Essendon Football Club, part of Essendon’s Team of the Century and a previous head coach at Fremantle Football Club.  He is also a pituitary patient having had successful surgery for acromegaly.  Mark spoke passionately at the launch event and has been involved in videos supporting the APF.
  • Completed several videos through the support of pharma interviewing patients speaking of their experience through diagnosis, treatment and how the support of the APF assisted them.
  • Commenced collaboration with the ESA in updating patient information sheets for the purpose of developing a publicly available free patient information website (hormones-australia.org.au), in doing so editing current information sheets with rebrand and rewording through this project (no cost to the APF).
  • Relocation of head office from Brisbane to Melbourne.

And to finish a formal acknowledgement of Sue Kozij who retired from her role in the Australian Pituitary Foundation in May 2018, concluding her work with us at the end of the financial year 2017-18.  Sue has worked tirelessly within and for the Australian Pituitary Foundation for what I can see is at least 10 years.  Her roles have included member, director, chairperson, manager and a true friend of the foundation.  As a mark of her work there were innumerable positive comments on our Facebook page following the announcement of her retirement.  We wish her well in the future in health, work and family life.