A little about us
The Australian Pituitary Foundation (APF) provides valuable support and information for patients, and their families, living with pituitary conditions. But that’s not all! We are also committed to raising much-needed awareness and advocacy within the community about pituitary conditions, as well as vital funds to go towards research into the screening, diagnosis, and treatment of these conditions.
Expression of Interest
Patient Representatives for the NSW Health Pituitary Project
NSW Health is undertaking a project aimed at gaining a deeper understanding of how clinicians and patients access pituitary services across the state. As part of this initiative, we are seeking patient representatives who have lived experience of a pituitary condition to share their insights and experience in accessing services.
What does this mean for me? As someone with lived experience of a pituitary condition, your insights are invaluable. By sharing your experiences, you can help us better understand the challenges faced by patient and contribute to meaningful improvements in care delivery across NSW. This will provide us with valuable insights into the challenges patients face, helping to guide improvements in service delivery. Your feedback is important in shaping the future delivery of pituitary care across NSW.
We invite you to participate in a virtual focus group session where you will have the opportunity to:
- Share your experiences navigating pituitary care
- Discuss your needs and concerns
- Suggest ways to improve services and support
Your participation is voluntary, and all feedback will remain confidential.
Available Focus Group Sessions: Tuesday 20 May, 5:30–6:30pm and Wednesday 21 May, 5:30–6:30pm
These sessions will be held online, and you will need access to a computer or mobile device with a functioning microphone and camera to participate.
How to Get Involved: If you are interested in participating, please fill in your details and indicate your availability using this form: https://forms.office.com/r/GvGRuzeL8q
If have any questions, please contact Brihony Porter at brihony.porter@health.nsw.gov.au by 12 May 2025.
This opportunity will be paid in line with NSW Health Guideline at $40 per hour.
Becoming a member
By joining the Australian Pituitary Foundation as a member, you will receive exclusive membership benefits, including first glance of ‘The Pituitary Connection’ quarterly newsletter, early bird registration for upcoming events, event discounts, direct access to the APF Board and attendance and voting rights at the Annual General Meeting.
As a member, you will be contributing to critical research into the screening, diagnosis, and treatment of pituitary conditions, as well as helping us to raise much-needed awareness about these conditions. You will also be helping us to provide valuable education, patient advocacy and ongoing support to patients and their families.
To become a member of APF, there is an annual fee of $50.00, which is renewable on the 1st July every year. To get started, click on the ‘Become an APF Member’ button below and follow our simple registration process.
Wear your Support: Shop our new APF merchandise!
We’re excited to announce the arrival of our exclusive Australian Pituitary Foundation merchandise.
Explore our new range of tees, totes, and stress balls, designed to raise awareness, and provide valuable support, for patients living with pituitary conditions, and their families. With all profits from each purchase going directly to the Australian Pituitary Foundation, you’ll have comfort in knowing that you’re helping us to provide vital funds to support research into the screening, diagnosis, and treatment of pituitary conditions.
- Unisex Tee: S, M, L and XL $20.00 each
- Tote Bag: $10.00 each
- Stress Ball: $5.00 each
Shipping charges are additional.
To order your APF merchandise, simply email support@pituitary.asn.au
Community Compass Campaign
In partnership with Ipsen, the Australian Pituitary Foundation (APF) present the Community Compass Campaign, a disease awareness initiative empowering patients to navigate how they live with Acromegaly through the shared experience of other people living with the condition.
Find out more here.
Elise’s journey with Cushing’s Disease…
In 2022, a ‘paint-your-partner’ date night led to a portrait my husband created—a portrait of a stranger. A stranger with a moon face straight from an Enid Blyton book. It wasn’t an affair, but a stark, visual representation of Cushing’s Disease, a degenerative pituitary condition that had hijacked my body, sending my cortisol levels soaring.
Rewind to 2019. In my early 30s, I was thriving on the outside, yet severely stressed inside. Leading a non-profit, building a vibrant life in Melbourne after years in India, grieving the breakdown of my spiritual community and death of my mother. Three years later, an insidious cascade of symptoms transformed me, inside and out, until I was unrecognizable.
Click here to find out more about Elise’s Story.
Stay informed
Stay informed about all things APF by subscribing to our quarterly Newsletter, ‘The Pituitary Connection’.