News and Events

Stay informed.  Get involved.

Welcome to the ‘News & Events’ hub!  This is your place to keep up-to-date with APF’s news and upcoming events.

Your official events listing

Expression of Interest

Patient Representatives for the NSW Health Pituitary Project

NSW Health is undertaking a project aimed at gaining a deeper understanding of how clinicians and patients access pituitary services across the state. As part of this initiative, we are seeking patient representatives who have lived experience of a pituitary condition to share their insights and experience in accessing services.

What does this mean for me? As someone with lived experience of a pituitary condition, your insights are invaluable. By sharing your experiences, you can help us better understand the challenges faced by patient and contribute to meaningful improvements in care delivery across NSW. This will provide us with valuable insights into the challenges patients face, helping to guide improvements in service delivery. Your feedback is important in shaping the future delivery of pituitary care across NSW.

We invite you to participate in a virtual focus group session where you will have the opportunity to:

  • Share your experiences navigating pituitary care
  • Discuss your needs and concerns
  • Suggest ways to improve services and support

Your participation is voluntary, and all feedback will remain confidential.

Available Focus Group Sessions: Tuesday 20 May, 5:30–6:30pm and Wednesday 21 May, 5:30–6:30pm

These sessions will be held online, and you will need access to a computer or mobile device with a functioning microphone and camera to participate.

How to Get Involved: If you are interested in participating, please fill in your details and indicate your availability using this form: https://forms.office.com/r/GvGRuzeL8q

If have any questions, please contact Brihony Porter at brihony.porter@health.nsw.gov.au by 12 May 2025.

This opportunity will be paid in line with NSW Health Guideline at $40 per hour.

Women in Life Sciences

APF Chair Malini Raj attended the Women in Life Sciences event at Doltone House, Sydney on 7 March 2025. The event was co-hosted by AusBiotech and Medicines Australia to mark International Women’s Day.

Join us at one of our free, cozy coffee catch-up events for our members. It’s the perfect opportunity to meet, mingle and share experiences in a warm and welcoming environment.

Stay tuned for further coffee catch up dates.

TASMANIA

  • Sunday 25th May – Tasmania (details to be confirmed)

VICTORIA

  • Sunday 15th June: 10.30am – 11.30am, Carlton Neighbourhood Learning Centre – 20 Princes Street, Carlton North, RSVP: vic@pituitary.asn.au

To register for these FREE EVENTS contact:

Brisbane: Sarah at qld@pituitary.asn.au / Melbourne: Lesley at vic@pituitary.asn.au / Perth: Mel at wa@pituitary.asn.au / Sydney: Sean at nsw@pituitary.asn.au / Hobart: Hilary at tas@pituitary.asn.au / SA: Rachel at sa@pituitary.asn.au

NSW

WA

SA

VIC

Connect with your State Coordinator!

Our State Coordinators open the door for members to connect, share their experiences, and offer mutual support.

To find your State Coordinator, simply click here.

Community Compass Campaign

In partnership with Ipsen, the Australian Pituitary Foundation (APF) present the Community Compass Campaign, a disease awareness initiative empowering patients to navigate how they live with Acromegaly through the shared experience of other people living with the condition.

Find out more here.

APF Support Groups – 2025

Our next round of APF Support Groups will be returning in August 2025!

Stay tuned for upcoming dates and details.

 

A partnership that will make us all ‘Go Do Good’!

We’re pleased to announce our new partnership with Go Do Good, an Australian business specialising in unique Australian-designed jewellery, gifts, and Christmas decorations.

It was only by chance that we stumbled across the ‘Hope Dandelion’ range. And we’re so glad we did!  The pendent necklace and earrings are not only beautiful and elegant, but they also fit perfectly with our brand and what we stand for as an organisation.

So, to help celebrate our 30th Anniversary, we’re providing you with a code, APF30HOPE, that can be used when purchasing any piece from the ‘Hope Dandelion’ range, directly from the Go Do Good website.  A portion of the sale will go directly to APF to help fund critical research into the screening, diagnosis, and treatment of pituitary conditions, as well as helping us to raise much-needed awareness about these conditions. Simply click on the link below to make your purchase.

Now let’s ‘Go Do Good’!

https://godogood.com.au/product/hope-dandelion-pendant-necklace/

Shari’s Story

Shari Dawson, shares her challenging Acromegaly journey with Australian media:

National 9 News7 NewsYahoo News

New York Post / The Mirror US / Unilad / News.com.au 

Stay informed

Stay informed about all things APF by subscribing to our quarterly Newsletter, ‘The Pituitary Connection’.

Click the link  below to read our latest newsletter:

Pituitary Awareness Days

  • ‘Rare Disease Day’ – 28th February
  • ‘Cushing’s Awareness Day’ – 8th April
  • ‘Child Growth Awareness Day’ – 20th September
  • ‘Pituitary Awareness Month’ – 1st October – 31st October
  • ‘Acromegaly Awareness Day’ – 1st November